Reviews of P.S. I have cancer by Mark Sims

Mark book cover front

We had this lovely review back in May.

Book Review: 24 May 2015
Title : P.S. I have Cancer: Wrestling Melanoma and Falling in Love
Author: Mark Sims
Publisher: Poetry Space Ltd 2018  £9.95

Reviewer: Polly Buchanan, Clinical Editor, Dermatological Nursing (Official Journal of the British Dermatological Nursing Group)

This remarkable book has been written by an even more remarkable person, Dr Mark Sims. Mark very sadly died aged 28years old. He had been diagnosed with malignant melanoma and this book represents, as he puts it, his story of defying the cancer and falling in love.
The book is written as journal, describing his experiences, thoughts and emotions during the years, months and final days of his life. He embraced life and grasped every opportunity live and love to the fullest.
His love for people, his friendships, and relationships represent a key focus throughout the book and how these helped him cope with the disease, highlighting the closeness and support from his family, friends and fiancée. The love story of Mark and Georgia is beautifully told and touches ones heart so deeply. The anecdotes and stories he recalls are of real life experience, which are often humorous, sometimes sad but always captivating. He demonstrates a positivity which fosters hope and understanding.
He has been very articulate and honest in his writing which gives readers insight to what it is really like living with melanoma. This is an insight which will resonate with other people who have a similar prognosis following the diagnosis of stage 4 cancer. Also, for me, reading this as a nurse, Mark’s story gives real insight into what he experienced at the patient – health care professional interface. He describes the way health care professionals communicated with him, both verbal and non-verbal behaviours and how he interpreted things and how it made him feel.
Something he described, which will stay with me forever, was how his felt when he read the job title that was on the nurse’s name badge, before anyone had spoken a word. He knew instantly, the information he was about to receive was going to be ‘bad news’.
Mark reflects on his career as a medical doctor, and his passion for medical research. This is clearly articulated in own experiences as a clinician as well as being a participant in clinical research studies. He strongly advocates the value of medical research in the discovery of new and effective treatments as well offering patients the opportunity to be part of it all, in seeking new knowledge and hope. I regard this book as a piece of qualitative narrative research in its own right. The richness of the data provides deep insight into survivorship, love and hope.
I found this book educational, with Mark’s own medical knowledge enhancing the story, offering medical images, scans, references and further reading. It is highly recommended reading and essential reading for every health care professional caring for persons with melanoma. It is a book that captivates, educates and provokes. Eloquently written, he deliberately arouses the reader’s interest. For health professionals, he asks us to consider the experience of melanoma from a patient’s perspective, how we communicate and how we can foster hope.
I didn’t have the opportunity to meet Mark, I wish I had, as he was a truly remarkable young man, in all that he achieved. He has left us a legacy through his writings, his blog and his fund raising which will help others in the future. I am grateful to his family and Georgie for publishing his work and giving me the opportunity to review it. I recommend it as a MUST read to all our BDNG journal readership.
All book profits are donated to the Mark Sims’ Just Giving Fund for Cancer Research UK (CRUK)

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Of speeches, and more speeches

by Sue Sims

Until Mark died and left me with his beautiful book to publish and promote, I had not imagined  becoming a public speaker. However speaking engagements have been rolling in as well as TV and press interviews.  I have found I love doing them. It’s another way for me to keep telling Mark’s story and to raise awareness of the horrible disease that is malignant melanoma. Other family members have been getting involved too. Dave made a speech at a data conference organised by Public Heath England. Also some friends have organised their own events to raise awareness and keep Mark’s story alive. We are very thankful to them.

Here are some highlights from these past few months.

Our book launches in Bath and Bristol.

 

 

Local press coverage. The story was also in The Daily Express, The London Evening Standard and other newspapers around the country.

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TV coverage. I was interviewed by presenters Jonty and Ellie. ITV have been amazing supporters.

 

Magazine coverage below. Dave telling the moving story of losing his identical twin in Multiple Matters (TAMBA), and me telling Mark’s story to That’s Life magazine.

 

Public speaking at CRUK conference in East London and at Battersea Race for Life.

 

I also spoke at Bristol Race for Life.

Here’s Dave at the data conference in Manchester. Above Dave there is a shot of Mark giving a speech at Leicester University when he was first diagnosed with Stage 4 malignant melanoma.

 

Dave at conference

Of books, lots and lots of books

The books have arrived and they are truly beautiful. You did a wonderful thing Mark, writing this.

 

Mark's book arrival

 

You can order your copy in the Poetry Space online shop/

Profits will go to Mark’s Just Giving Fund for CRUK

open book

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

For me it has been an amazing project, editing Mark’s 80,000 words and adding a chapter of my own in line with Mark’s wishes. All the family have helped in some way, by proof reading and advising. Now it is here, another lasting legacy for a beautiful guy.

 

Sue Sims

 

 

 

Update on Mark’s book

With the help of the family, I have now made a lot of progress on Mark’s book and it is currently at the final proof reading stage.  This is the cover:

Mark book cover front

I have created  a dedicated Facebook page for the book and have started to reserve books for people who would like to pre-order.I already have orders for 60 books. So thanks if that is you.

You can pre-order by visiting the page and sending a message.

The book will be published in paperback by Poetry Space Ltd and we plan to launch in February or March next year. It is 312 pages long and will retail at £9.95.

Profits from sale of the book will be donated to Mark’s fund for CRUK 

“Mark’s knowledge of medicine, personal passion and eloquence put him in a unique position which compelled people to listen. Incredibly, he gave his precious, remaining time (freely) to benefit future generations.”

Lynn Daly, Cancer Research UK

“It was Mark’s honesty and integrity that struck me. Brave is a word that seems to be used all the time these days, but Mark was truly brave, Even when he was incredibly poorly, he still wanted to share his experiences to warn others of the terrible dangers of skin cancer.”

Kylie Pentelow, reporter for ITV news. 

 

Sue Sims

Of raising funds for CRUK

Raising funds for Cancer Research UK was extremely important to Mark. When he was at his lowest ebb it gave meaning to his life to know that he was giving hope to people in the future. It is still vitally important to us to continue to keep the money coming in and we are so grateful to all of you  for doing your own fundraising and adding to the pot, and also for every single donation you give.

As many of you will know, I am currently editing Mark’s book and also writing a collection of poems based on my experience of bearing witness to Mark’s journey through cancer. I am making progress  and both of these titles will help to raise both funds and awareness.

In the meantime I am selling copies of my 2015 collection of poems, A number of things you should know in aid of Cancer Research UK. The book normally retails at £7.95 from the publisher and from Amazon books, however if you would like a copy directly from me please make a donation  for this amount or more on  Mark’s Just Giving Page and then Facebook message/text or e-mail me susan@poetryspace.co.uk with your details so I can put a copy in the post to you. As the title suggests I cover a variety of themes in this book, some personal, some fictional, some just on random subjects and I’m pleased that I’m getting people into poetry who have not read it since school.

A number of things you should know front cover

Here’s an example of a personal one:

Dear Dad,

Our day’s been good,

you got to see your grandson and his girl. We all shared lunch and  talked and laughed.

Then I took you to the park

and pointed out ducks diving,

ducks emerging, shaking feathers, drying in the sun.

You loved it all and it was good to see you smile.

When I said I was going

you thought I was leaving you.

You get the idea sometimes

that I’m your wife. I do the things a wife does, empty your bag, wipe your bum.

Your logic’s good. I’m your daughter, I say. I’ve got a husband and you cry. I leave you with music to soothe your heart

knowing the carer is coming soon, to take you to your bed.

Susan Jane Sims

Dad died on October 24th, 2015, aged 94. He did incredibly well but in the last couple of years became quite frail physically and mentally due to age and to Alzheimer’s, another cruel disease.

On another subject, thanks for all the lovely messages I have had today from people knowing that today might be hard as it is Mother’s Day. This is much appreciated. I did hear from Mark’s three brothers, a lovely bunch of tulips arrived from Matt, and also an extra Mother’s Day card from Rob and Rachel in New York. That was so sweet of you guys. Perhaps we could invent an Auntie’s Day.

With best wishes, Sue (Mark’s mum)

Of memorial walks

On Saturday June 10th you are welcome to join us for a memorial walk for Mark.This has been  organised by Chris in conjunction with Cancer Research UK.

Please meet us at Bath Abbey at 11.15. There will  be a registration table at the side of the abbey.

The walk will leave Bath Abbey at 12 and we shall walk to Swineford via Kelston Round Hill. This is approximately 6 miles. The route will follow the Cotswold Way and should take three hours tree for moderate walkers.

We are planning to have refreshments at Round Hill after about 4 miles and then gather afterwards in The Swan Pub in Swineford.

This is the exact route Chris and Mark took on a very special day back in November  2015. By then Mark’s Dabrafenib had stopped working and he received a phone call while they were out saying that he could start Pembroluzimab, a new and innovative immunotherapy drug.So there was cause for celebration.

Please do join us if you can. We want to remember Mark whilst doing an activity he really enjoyed.

A friend is kindly organising a minibus to take people back to Bath after the event and there is a good bus route on the main road in Swineford going towards either Bath or Bristol.

We are hoping to raise money for Mark’s appeal for CRUK which is now at a staggering £181,700.

A note on Public Liabilty

Please note Cancer Research have public liability insurance for this event however their responsibility for us all will end when we reach Swineford. If using the minibus there is insurance cover. It is your responsibility to get yourself safely home by foot, bus or other means. 

 

Of ‘a Memorial for Dr Mark Sims in Leicester’

 

Leicester University meant a lot to Mark. It was the place he trained to be a doctor, made many good friends and the place he revisited in March 2015 and met the love of his life Georgie . So it was fitting that the lovely people at the Alumni association made it possible for us to host a wonderful memorial event for Mark at the university on Saturday 25th February.
The day itself was so special. Friends from many parts of Mark’s life, school, explorer scouts,university, work, hospitals, rugby team, CRUK and social social media gathered with us his family to tell stories, pay tribute and simply remember the lovely, kind, funny, and inspirational person Mark was.
We laughed hard through much of it and cried too.
If you want to see a video of the ceremony pleas ask.